ABOUT ME

Hello everyone, I'm Vinay Jani, an epilepsy advocate and an endurance athlete. After living with drug-resistant epilepsy and undergoing neurosurgery in 2021, I’ve been fortunate to live a seizure-free life. This experience fueled my commitment to raising awareness, reducing stigma, and supporting those affected by epilepsy.

This year, as an marathoner, I’m running the Vedanta Delhi Half Marathon to raise funds for both SUDEP and for epilepsy awareness. But I can't do this alone—I need your support.

MY APPEAL

Epilepsy affects millions, yet it remains poorly understood and often stigmatized. The costs of ongoing medications and life-saving surgeries can reach tens of thousands of dollars, leaving many families struggling to afford proper care. Your contribution will directly help provide much-needed resources for treatment, awareness campaigns, and support services.

Ekatwam is dedicated to improving the lives of individuals with epilepsy. They organize awareness camps to educate communities about epilepsy, provide essential medications to those who cannot afford them, and offer surgical support to eligible patients. Their comprehensive approach helps bridge gaps in care and ensures that vital resources reach those in need.

Donate today and help me to make a difference. Together, we can bring hope and support to those in need, creating a more informed and compassionate society!

RAISING FUNDS FOR

Ekatwam

“EKATWAM”, an NGO working for People with Epilepsy, was founded in 2013 by a group of
committed people engaged in treatment of Epilepsy, Persons with Epilepsy, their caregivers,
and well-wishers.

Dr Manjari Tripathi, Prof of Neurology, AIIMS Delhi has been it’s President since inception and
is the driving force behind the various activities undertaken by EKATWAM.

Other eminent Governing Body Members include Dr P Sarat Chandra, Prof of Neurosurgery,
AIIMS Delhi and Ms Shivani Wazir Pasrich, Actor-Model-Anchor-Dancer-Compere & Former
Miss India Worldwide.

Epilepsy affects more than 50 million people worldwide, of which more than 12 million
people are in India alone. Despite such a high prevalence, the awareness concerning epilepsy
in India is quite low. This lack of awareness further perpetuates the already existing stigma
around epilepsy, as persons with epilepsy face discrimination and harassment for education,
employment, and marriage. Hence, with the aim of making a difference in the lives of persons
with epilepsy, “EKATWAM” (an NGO), was founded in 2013. In the last 11 years, EKATWAM
has provided free medicines to hundreds of poor patients, provided financial aid for surgeries
to patients who could not afford the same, assisted patients in getting treatment at AIIMS
Delhi, organized events to create awareness about Epilepsy and support group meetings for
persons with epilepsy and their care givers.

MY SUPPORTERS

A big thank you to all those who have donated on this page.

MY GALLERY

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